The conference also featured a panel of patients who urged the doctors, nurses, hospitals and insurers to pay more attention to the frustrations, anxieties and concerns of those they are treating.
“The reality for a lot of underserved communities is that people of color are definitely treated very differently than our Caucasian counterparts,” said Bridgette Hempstead, a metastatic breast cancer patient and the founder of Cierra Sisters, an African-American cancer and support organization.
Diane Mapes, a breast cancer survivor and writer for Fred Hutch, said patients need to feel that their doctors and nurses are partners in their care, and that too often patient concerns are dismissed. “Patients are experts on their own bodies, and how their bodies react to drugs,” she said.
Janet Freeman-Daily, a retired aerospace engineer and stage 4 lung cancer patient and advocate, called for a more consumer-friendly version of the community cancer report so that patients can look at issues such as out-of-pocket costs. “The health care system does not make it easy for all people to be able to afford cancer care,” she said, “and quality is not just giving the right drug to a patient, but also outcomes in terms of how the patient felt.”
HICOR director Ramsey stressed that the next step for participants who helped create the Community Cancer Care report will be to take those findings to heart and to take meaningful actions based on it.
“We’ve got the numbers,” Ramsey said as he closed out the daylong meeting. “Now it’s time to do something. … We want to move those numbers. We want to raise the bar for care. We want to break the cost trend if we can in oncology. We want to make the patients have a better experience.”